Children's Hospice International
A non-profit organization dedicated to providing emotional, spiritual and medical support for children with life-threatening conditions and their families. Works to expand access by children to palliative care and hospice services and provides technical assistance to professionals.

Hospice Care For Children
Edited by Ann Armstrong-Dailey and Sarah Zarbock Goltzer. A professional resource book for pediatric palliative and hospice care. Chapters by contributing authorities in the field cover practical issues that make caring for dying children different from any other type of hospice work. This book will be of use to hospice professionals, child psychologists, school-based clinicians, bereavement counselors, and other end-of-life professionals working in family settings.

Hospice organisations in the U.K. and Ireland
A regional directory listing hospices in the United Kingdom and Ireland. Includes a separate list of children's hospices.

The Association of Children's Hospices
An association of over forty voluntary organisations in the United Kingdom dedicated to the care of terminally-ill children and their families.

Keech Cottage Children's Hospice
Keech Cottage is a children's hospice being built by the Pasque Hospice Charity to care for and support families with a dying child or young person under eighteen years of age in Bedfordshire or Hertfordshire in the UK.

Helen House Children's Hospice
Helen House, Oxford, UK was the world's first children's hospice and probably deserves a more glittering home-page than this. The page is limited to contact details and links to other resources (including hospices) in the Oxford region. The information is clearly and economically presented but it would be nice to have more of it.

Care of the Dying Child
A concise reference text for pediatricians, palliative care physicians, and other health care professionals working with terminally ill children and their families. Compiled by The Hospital for Sick Children, London, U.K., one of the world's best known pediatric hospice services. Twelve U.K. contributors cover medical, psychological, and practical issues in caring for dying children, with a focus on progressive chronic illness. Edited by Ann Goldman. Published 1994.

University of Toronto Joint Centre for Bioethics
The University of Toronto Joint Centre for Bioethics is a partnership among the University of Toronto, Baycrest Centre for Geriatric Care, Centre for Addiction and Mental Health, The Hospital for Sick Children, Mount Sinai Hospital, Sunnybrook and Women's College Health Sciences Centre, The Toronto Hospital/Princess Margaret Hospital, and Toronto Rehabilitation Institute. Their mission is to provide leadership in bioethics research, education, and clinical activities. Recently, the Centre established a new End-of-Life section on its web site. Although still new and fairly modest, the section includes hyperlinks to other sources of end-of-life information on the web. It also includes the full text of important documents on end-of-life care including publications by Faculty of the centre.

After the Death of a Child
By Ann K. Finkbeiner. Finkbeiner, whose only child died in 1987, tells her story and provides detailed profiles of other bereaved parents. The composite picture that emerges shows the complexity of the changes that follow the death of a child. Parental responses range from the heroic to the poignant. The book gives no easy answers because there aren't any.

Contact a Family
A British site with an excellent collection of resources related to children with disabilities, rare diseases, and genetic disorders. In contrast with adult palliative care, the paediatric specialty deals with a large number of patients with rare genetic disorders. Finding up-to-date information about them is vital for the family and for the professional carer such as a general practitioner (FP) or paediatrician. This site gives access to family support groups and has many links to databases of rare diseases. Includes listings for children's hospices and respite care in the UK. Gives information on the Rare Disorders Alliance of the UK (RDA-UK). Clean site design makes navigation straightforward. Useful for both families and professional caregivers.

Sheba
This is the web site for the first children's hospice in Israel, operated by Chaim Sheba Medical Center, affiliated with the Tel Aviv University Sackler School of Medicine. The web site is actually in English, but the home page only shows Hebrew, which may cause some visitors who do not read Hebrew to give up too quickly. Keep clicking and you will make it to the actual content area eventually.

Hope House (UK)
A specialist children's hospice located in Shropshire, England.

Heart-To-Heart
Drawn from over 80 hours of recordings, this set of three hour-long audio documentary programs examines the roles that families, communities, physicians and other healers play in caring for people who are dying. Topics examined include cultural variations, fear of the use of morphine for pain management, pediatric palliative care, and lack of funding to pay for good programs. Originally produced for public radio, now available on CD.

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