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* Palliative Medicine
Symptom Management Algorithms For Palliative Care [icon]
By Linda D. Seaman. This technical resource for palliative care professionals presents decision algorithms for assessment and management of pain and common symptoms in terminal illness. Includes material on appetite problems and their relation to palliative nutrition. The author is the Medical Director for Providence Hospice of Yakima Washington.

Oxford Textbook Of Palliative Medicine (Second Edition) [icon]
Edited by Derek Doyle, Geoffrey Hanke, and Neil MacDonald. The second edition of "the Bible of palliative care" is a comprehensive medical textbook and reference volume covering most practical aspects of hospice comfort care for the terminally ill. Covers quality of life assessment, pain and symptom management, pediatric issues, nutrition, psychiatric issues, special roles of members of the caregiving team such as nurses, occupational therapists, and social workers, plus many other topics. Now available in paperback. Published April, 1999.

The American Academy Of Hospice And Palliative Medicine [icon]
An international membership organization of physicians dedicated to the advancement of hospice and palliative medicine in the care of the terminally ill. Web site includes information on events and meetings, certification in hospice and palliative care, and a link list. Offers a series of "UNIPAC" self-training modules for physicians who care for terminally ill patients and their families. The UNIPACs offer practical information and suggested interventions related to clinical situations, pain and symptom management, nutrition, ethical issues in withdrawing life-sustaining treatment, and legal matters in terminal care. The UNIPACs are approved for 3 credit hours of CME each. You can search the Growth House database from this site. AAHPM is a member of the Inter-Institutional Collaborating Network On End Of Life Care (IICN) which links major palliative care organizations internationally.

By No Extraordinary Means: The Choice to Forgo Life-Sustaining Food and Water [icon]
Joanne Lynn M.D., Editor. Intended for a professional palliative care audience, this book examines the medical ethics associated with nutritional care of the terminally ill and the difficult questions surrounding withdrawing life-sustaining treatment. The New England Journal of Medicine describes it as "...thoughtfully written ...well-edited, cohesively integrated... valuable for physicians, nurses, nutritionists, attorneys, members of the clergy... and the general public." Published 1990.

Forgoing Life-Sustaining Therapy [icon]
By Margaret L. Campbell, RN, MSN, CS. Foreword by Joanne Lynn MD, MA, MS. Forgoing life-sustaining treatment can be one of the most difficult aspects of care for the dying. This concise and practical book is written for clinical care providers such as nurses and physicians. It gives sensible guidance on tough issues such as how to stop a ventilator, the use of artificial nutrition and hydration, forgoing dialysis, and management of delirium in the final days of life. Illuminating case examples draw out important clinical aspects of care while addressing ethical and legal considerations and the processes of communication and decision making. This authoritative medical resource dispels common myths about forgoing treatment, offers historical background on right-to-die cases, and provides definitions and discussions of ethical principles.

Nutritional Care Of The Terminally Ill [icon]
By Charlette R. Gallagher-Allred. A professional book for use by dieticians working in hospice and palliative care settings. Addresses needs, strategies, and ethics for feeding and palliative hydration. This is an update to the author's 1989 reference work on the same topic. Published January, 1997.

Nutritional Care Of The Terminally Ill [icon]
By Charlette R. Gallagher-Allred. A professional book for use by dieticians working in hospice and palliative care settings. Addresses needs, strategies, and ethics for feeding and palliative hydration. Published 1989.


* Death With Dignity
Handbook For Mortals [icon]
By Joanne Lynn, M.D., and Joan Harrold, M.D. A comprehensive and authoritative guide to end of life care written for a general audience by a team that includes some of the world's top specialists. Offers a wealth of practical advice on all aspects of end of life care, including how to make decisions about care, where to find support and treatment resources, how to communicate with physicians, how to get effective pain management, palliative nutrition, withdrawing life-sustaining treatment, issues in hastening death, and a host of other fundamental concerns. Published March, 1999.


* Miscellaneous Resources
Washington Post: Life and Death Battle Plays Out In Virginia [icon]
A September 9, 1998, story on the difficult choices that familes face when confronted with persistent vegetative state situations. The story details the ethical dilemma faced by the Finn family of Virginia, which became embroiled in a legal battle over removal of father Hugh Finn's feeding tube. The story makes a strong case for documenting preferences for end of life care through the use of advance directives.

Tube Feeding Megasearch [icon]
This link performs an automated search for education materials related to tube feeding in the IICN Public Library, a repository of palliative care materials from several respected sources.


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