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* Palliative Medicine
Hospice and Palliative Care: Concepts and Practice, Second Edition [icon]
By Walter B. Forman (Editor), Denice C. Sheehan, Robert P. Anderson. This book for health care professionals offers both theoretical perspectives and practical information. In the first part the authors present a historical overview of hospice and explain how the interdisciplinary team functions in the hospice setting. In the second part the authors discuss challenges to the team including symptom management, death education, ethical issues, and support groups. The future of hospice is addressed in the final part. Useful specialized topics include program management, eligibility and reimbursement, and cultural concerns. The contributors are leaders in community medical care, geriatric care, nursing care, pain management, research, counseling, and hospice management. An excellent choice for medical students, nursing students, or any professional working with seriously ill clients where hospice care may be an appropriate care option. Published May 2003.

New Mexico Palliative Care System [icon]
A network of seven rural hospice programs in New Mexico, including the Indian Health Service. The network is based at the Cancer Center at the University of New Mexico. You can search the IICN Public Library from this site.

Palliative Care Council Of South Australia, Inc. [icon]
A regional professional organization with over 500 members. Website includes a calendar of upcoming events and referrals to hospice, palliative care, and domiciliary nursing services throughout the region. Specialized content includes Multicultural Palliative Care Guidelines for working with Non English Speaking Background (NESB) groups. The online guide has practice guidelines and specific recommendations for the following language groups which were chosen based on prevalence in the Australian 1996 Census: Arabic, Bosnian, Chinese, Croatian, Greek, Hindi, Italian, Japanese, Khmer, Korean, Macedonian, Maltese, Persian, Polish, Portuguese, Russian, Serbian, Spanish, Turkish, and Vietnamese. You can search the Growth House database from this site.

Palliative Care Victoria [icon]
The Victorian Association for Hospice and Palliative Care (VAHPC) is a professional society representing these services in the state of Victoria, Australia. Website includes referrals to hospice, palliative care, and domiciliary nursing services throughout the state, including Metro Melbourne. Specialized content includes Multicultural Palliative Care Guidelines for working with Non English Speaking Background (NESB) groups. The online guide has practice guidelines and specific recommendations for the following language groups which were chosen based on prevalence in the Australian 1996 Census: Arabic, Bosnian, Chinese, Croatian, Greek, Hindi, Italian, Japanese, Khmer, Korean, Macedonian, Maltese, Persian, Polish, Portuguese, Russian, Serbian, Spanish, Turkish, and Vietnamese.

* Death With Dignity
Heart-To-Heart [icon]
Originally created as three, hour-long audio documentaries for national radio broadcast, this wonderful education resource is now available on CD. It will make a great training tool for hospice volunteers, health care professionals, and anyone else who wants to learn about key issues in end-of-life care in an entertaining, easy-to-absorb format. The series draws from over 80 hours of tape and includes remarkable moments with people who are facing death, their families and those who are helping them along the journey. While the stories are personal, the themes are universal as we all struggle to come to terms with the passing of friends, family members, and ultimately, ourselves. It examines the barriers to good care that arise from cultural misunderstanding, from fear over the use of morphine and other drugs, and from lack of funding to pay for good programs.

* Quality Improvement For End Of Life Care
Promoting Excellence in End-of-life Care [icon]
This national technical assistance group works to improve end-of-life care in the United States by supporting many innovative demonstration projects within health care institutions. Web site includes a searchable database of innovative projects and a library of useful protocols and measurement tools that can be adapted to other settings. Projects cover a wide range of special situations and populations, including pediatric hospice care, culturally-diverse populations, disease-specific programs, nursing homes, prisons, in-hospital palliative care centers, and much more. This site is a "must see" for health care professionals looking for ideas on how to improve care within their own facilities.

* General Bereavement
Ethnic Variations in Dying, Death, and Grief [icon]
By Donald P. Irish and Kathleen F. Lundquist. A compilation of professional articles intended to help bereavement counselors, hospice workers, and other death and dying professionals work more effectively with clients from social and ethnic groups other than their own. Specialists from many backgrounds give both cross-cultural overviews and personal perspectives.

Living With Grief [icon]
Kenneth J. Doka, Editor. A compilation of cross-cultural essays on loss and grief with emphasis on ethnic, spiritual, class, and gender diversity in grieving. Includes a directory of resource organizations. This is the companion book for the 1998 bereavement teleconference sponsored by the Hospice Foundation Of America. Published April, 1998.

GriefLink [icon]
A grief education site based in South Australia. Includes concise, high-quality information on various specialized types of grief. Includes links to related resources with particularly good coverage of Australian states and territories. GriefLink was developed as a joint project between the National Association for Loss and Grief (NALAG) and the Department of General Practice at the University of Adelaide in South Australia. An expert panel ensures that content is above the norm for internet fare.

* Death and Dying Directories
Kearl's Sociology Of Death And Dying [icon]
Sociology professor Michael Kearl maintains this extensive collection of resources on many aspects of death and dying. Specialized thanatology content includes statistics and pointers to datasets related to morbidity, mortality, cultural differences, and public opinion. You can search the Growth House database from this site.

The Last Dance: Encountering Death And Dying [icon]
By Lynne Ann Despelder and Albert Lee Strickland. This popular textbook for college-level death and dying courses is written for a general audience. It gives a comprehensive and readable introduction to the main issues in contemporary thanatology. Over the course of six editions this book has become a well-rounded introductory text that covers all the bases in enough detail to wet the appetite of serious students. The fourth edition places more emphasis on cross-cultural perspectives on death and the diversity of ethnic traditions in heterogenous modern societies. Other chapters are devoted to grief, bereavement, funeral practices, suicide, attitudes about immortality and the afterlife, and near-death experiences.

A Cross-Cultural Look at Death, Dying, and Religion [icon]
By Joan K. Parry and Angela Shen Ryan (Editors). A cross-cultural study with particular attention on how religious perspectives and cultural differences influence attitudes about death and dying.

CDC: Leading Causes Of Death [icon]
Comprehensive mortality data for the United States provided by the Centers For Disease Control (CDC). Includes breakdowns by race, sex, age, and state.

* AIDS: Asia-Pacific Resources
Growth House Directory of Asian AIDS and HIV Resources [icon]
Growth House regional directory of Pacific Rim AIDS and HIV resources, organized by country. These websites reflect cultural, ethnic, and language differences within the Asia-Pacific region.

The Spirit Catches You And You Fall Down [icon]
By Anne Fadiman. This brilliant study in cross-cultural medicine vividly tells the moving true story of the collision between Western medicine and the spiritual beliefs of Hmong immigrants from Laos. Published September, 1997.

Asian and Pacific Islander Wellness Center [icon]
Provides culturally and linguistically-sensitive HIV/AIDS prevention education programs and serves as a community health resource for Asian and Pacific Islander communities in San Francisco. This agency is the product of a merger of the Asian AIDS Project and the Living Well Project. Web site is multilingual in English, Chinese, Hawaiian, Hindi, Ilokano, Japanese, Khmer, Korean, Lao, Tagalog, Thai, Vietnamese, and Visayan.

* San Francisco Bay Area Resources
Access to End-of-Life Care [icon]
Works to raise awareness of multicultural issues in end of life care and improve services for the culturally and ethnically diverse population of the San Francisco Bay Area. Provides education about death, dying, and grieving from a multicultural perspective. You can search the Growth House database from this site.

* Miscellaneous Resources
Pacific Friends [icon]
A lesbian and gay social club in San Francisco promoting advocating friendship and cross-cultural understanding between Asians/Pacific Islanders and others. You can search the Growth House database from this site, using a special search to display Asian AIDS and HIV resources.

ACPE - Association for Clinical Pastoral Education, Inc. [icon]
A multicultural, multifaith organization devoted to improving the quality of ministry and pastoral care offered by spiritual caregivers of all faiths through the educational methods of Clinical Pastoral Education (CPE). CPE is offered in many settings, including hospices and terminal care facilities. Affiliates include 350 ACPE-accredited CPE centers and around 115 theological schools.

Conscious Dying [icon]
By Benito F. Reyes. A cross-cultural study of spiritual beliefs and practices related to conscious dying. Many religions believe in an afterlife, and this book surveys various approaches that people have taken toward the transition from this world to whatever may follow. Published January, 1986.

DiversityRx.org [icon]
Provides education for health care providers, policymakers, and the public on how language and cultural competence affect the delivery of quality healthcare services to ethnically diverse populations. Well-organized web site has information on basic facts about demographics, models and standards of practice, U.S. Federal and State laws and regulations, professional networking opportunities, and links to related resources.

HOT - Healthy Oakland Teens Project [icon]
Targeted at an urban, ethnically diverse junior high school. The project's goal is to reduce adolescents' risk for HIV infection and AIDS by using peer role models to advocate for responsible sexual decision making, healthy values and norms, and safer sex practices. You can download the entire curriculum from this site.

Massachusetts Compassionate Care Coalition [icon]
The Massachusetts Compassionate Care Coalition (MCCC) is a voluntary collaborative of organizations, agencies, institutions and individuals who seek to enhance care for persons affected by lifelimiting illnesses. The MCCC includes providers and consumers of health services, who represent the economic, linguistic, racial, religious, and cultural diversity of the Commonwealth of Massachusetts.

Resources for Death and Dying Courses [icon]
A links collection intended for use by students of a sociology course in death and dying at Cal State Hayward taught by Professor Nan P. Chico.

Cultural Issues in End-of-Life Decision Making [icon]
By Kathryn L. Braun (Editor), et al. Published 1999.

Initiative to Improve Palliative Care for African-Americans [icon]
The Initiative to Improve Palliative Care for African-Americans (IIPCA) was formed to define and promote a research, education, and policy agenda for the improvement of care for African-American patients facing serious illness.

Heart-To-Heart [icon]
Drawn from over 80 hours of recordings, this set of three hour-long audio documentary programs examines the roles that families, communities, physicians and other healers play in caring for people who are dying. Topics examined include cultural variations, fear of the use of morphine for pain management, pediatric palliative care, and lack of funding to pay for good programs. Originally produced for public radio, now available on CD.

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